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Indigenous Australians and the National Disability Insurance Scheme

Appendix 4: Data sources on disability for the Indigenous population

Table A4.1 Data sources on disability for the Indigenous population: Scope, definitions, data items and data quality/gaps

Data source

Scope/ population

Time period/frequency of collection

Definition of disability used

Disability data items of relevance

Geographical variables included in data set

Data quality/ data gaps

NATSISS

Indigenous people aged 15 years and over.

Every 6 years; last survey conducted in 2008

Disability or long-term health condition: person has one or more conditions which have lasted, or are likely to last, for six months or more, and that restrict everyday activities.

Profound or severe core-activity limitation: person requires help or supervision for one or more core activities, such as self-care, mobility or communication.

Disability status:

Profound or severe core-activity limitation

Unspecified limitation or restriction

Total with disability or long-term health condition

Disability type:

Sight, hearing speech

Physical

Intellectual

Psychological

Type of restrictions

Sight problems

Hearing problems

Speech problems

Blackouts, fits or loss of consciousness

Difficulty learning or understanding things

Limited use of arms or fingers

Difficulty gripping things

Limited use of legs or feet

Any condition that restricts physical activity or physical work

Any disfigurement or deformity

Shortness of breath, or difficulty breathing

Chronic or recurring pain

A nervous or emotional condition

Long term effects as a result of a head injury, stroke or other brain damage

State/Territory

Remoteness (ASGC)

State/Territory by ASGC (selected cross-classifications where sample size permits)

Detailed disability data only collected in non-remote areas:

Additional criteria were used to identify people with disability in remote areas, meaning that the common criteria (remote + non-remote) is not strictly comparable between the 2002 and the 2008 surveys, or with non-Indigenous. As a result, analysis of comparisons with the 2002 NATSISS and with non-Indigenous Australians are restricted to persons living in non-remote areas only (using the broader criteria).

Disability data items only collected for persons aged 15 years and over.

Survey only conducted every six years.

Non-Indigenous comparisons available from 2007–08 NHS and 2006 GSS.

Any other long-term condition that requires treatment or medication

Any other long-term condition.

Whether has education restriction due to disability, and type of employment restriction.

Whether has employment restriction due to disability, and type of education restriction

Census

Total Australian population

5 yearly

2006 most recent data available.

2011 will be available in late 2012

Core activity need for assistance.

Disability status:

Has core activity need for assistance

Does not have core activity need for assistance

State/Territory

Remoteness (ASGC)

SLA

SDD

SD

Postcode

State/Territory by ASGC

Disability question included for first time in 2006 Census, so no time series.

Census does not include questions on type of disability or impact measures.

Census only conducted every five years.

SDAC

Total Australian population

6 yearly

2009 most recent.

Any limitation, restriction or impairment which restricts everyday activities and has lasted or is likely to last for at least six months. This definition includes a range of conditions that result in mild to profound limitations.

Disability status:

Has disability and profoundly limited in core activities

Has disability and severely limited in core activities

Has disability and moderately limited in core activities

Has disability and mildly limited in core activities

Has disability and not limited in core activities but restricted in schooling or employment

Has disability and not limited in core activities or restricted in schooling or employment

Has a long-term health condition without disability

No long-term health condition

State/Territory

Remoteness (ASGC)

Indigenous sample size very small and data not considered to be reliable for reporting (Indigenous data item not included on CURF).

Does not include very remote areas.

Survey only conducted every six years.

Data definitions align with the International Classification of Functioning, Disability and Health.

or disability

Disability type

Loss of sight

Loss of hearing

Speech difficulties

Breathing difficulties

Chronic or recurrent pain or discomfort

Blackouts, fits or loss of consciousness

Learning or understanding difficulties

Incomplete use of arms or fingers

Difficulty gripping or holding things

Incomplete use of feet or legs

Nervous or emotional condition

Restricted in physical activities or work

Disfigurement or deformity

Mental illness

Receiving treatment

Other type of restriction

Conditions

Main condition causing disability

Cause of main condition

Impact measures:

Level of assistance needed with day to day tasks (listed) because of disability

Broad area of activity where assistance is required or difficulty is experienced

Specific types of activity where assistance is required or difficulty is experienced

Whether additional aids are needed

Whether receives assistance (formal/informal) with broad area activity

Frequency of need for assistance

Whether needs more formal/informal assistance

NATSIHS

Indigenous population (all ages)

6 yearly

2004-05 most recent

Long-term health condition.

Whether has long-term health condition

State/Territory

Remoteness (ASGC)

State/Territory by ASGC (selected cross-classifications where sample size permits)

No specific data items for disability - survey is not able to distinguish between persons with a long term health condition without a disability.

Survey only conducted every six years.

Disability services NMDS

Users of disability support services where funding has been provided by a government organisation operating under the NDA.

Annual.

Most recent data available 2009–10

Need for assistance in nine activity areas (ICF compliant).

Total number of disability support service users.

Disability group (primary and other significant):

Type of assistance provided (high level categories):

Accommodation support

Community support

Community access

Respite

Employment

Type of assistance provided (specific categories):

Support needed:

Activities of daily living

Activities of work, education and community living

Activities of independent living

Amount of assistance (hours)

Client:

State/Territory

ASGC

Postcode

Provider:

Postcode

SLA

Sector

The DS NMDS does not currently contain data on outcomes of services received; however, the DS NMDS is currently being redeveloped and will include such information in the future.

Potential population is defined as people aged under 65 years with profound or severe core activity limitation.


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